COLUMBIA, Md., Sept. 17, 2025 /PRNewswire/ — The Foundation Fighting Blindness, the driving force in the global development of treatments and cures for blinding diseases, calls on the House Energy & Commerce Committee to reauthorize the Rare Pediatric Disease Priority Review Voucher (PRV) Program by advancing H.R.1262, the Give Kids a Chance Act.
“Every child deserves the chance to preserve their sight, regardless of how rare the condition is that is affecting their vision,” said Jason Menzo, CEO of the Foundation Fighting Blindness. “Reauthorizing the PRV Program will help speed access to life-changing therapies for rare pediatric conditions, while upholding FDA efficacy and safety standards and requiring no taxpayer funding.”
Many inherited retinal diseases begin in childhood and are progressive, meaning each year without treatment can bring irreversible vision loss. The PRV Program provides a market-based incentive that attracts investment to small pediatric populations where development costs often outweigh projected revenues.
About the Foundation Fighting Blindness
Established in 1971, the Foundation Fighting Blindness is the world’s leading private source of funding for research on retinal degenerative diseases. The Foundation has raised over $954 million toward its mission to prevent, treat, and cure blinding diseases such as retinitis pigmentosa, age-related macular degeneration, Usher syndrome, and more. Visit FightingBlindness.org for more information.
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SOURCE Foundation Fighting Blindness
